The idea for this page was born when I saw CEO Frank Warren’s TED talk about people’s secrets.  It’s touching, poignant, awesome.  (It’s only 10 minutes long, and well worth watching.)  You might visit his site, too.

I wondered: what would it be like if those of us with stigmatized, invisible illnesses were able to tell what’s it’s like to be ill, but not believed?  What is it like to be sick, yet not receive the sympathy, services and empirically-based treatment others get?

And finally, here’s the question I’d like you to answer below in the comments section:

What’s the worst thing about living with your chronic, stigmatized illness? 

Please keep your answers to 500 words or less.  Posts will be moderated, and if longer than 500 words, might be edited for space.